tag:blogger.com,1999:blog-8890141383477975932.post8949593950982800545..comments2014-02-23T10:22:32.911-06:00Comments on Little Bluebirds Fly: Test Results - Part 1Bluebirdhttp://www.blogger.com/profile/05026618678540051581noreply@blogger.comBlogger11125tag:blogger.com,1999:blog-8890141383477975932.post-24231984832471955282009-02-14T08:46:00.000-06:002009-02-14T08:46:00.000-06:00Hi--I have another thing to test for. I lost 2 ba...Hi--I have another thing to test for. I lost 2 babies due to thickening blood. My problem was ....antiphospholipid syndrome. It's a mouthful, I know. During my nest 3 pregnancies, I took a baby aspirin every day, as well as daily Lovenox injections. All 3 babies were carried to term and are healthy. I'm sure your doctor tested you for this, but I just wanted to throw it out there.<BR/>Madelinehttps://www.blogger.com/profile/16824293250459510867noreply@blogger.comtag:blogger.com,1999:blog-8890141383477975932.post-52647051576682651222009-02-13T14:58:00.000-06:002009-02-13T14:58:00.000-06:00That sucks when the results aren't clear.My assvic...That sucks when the results aren't clear.<BR/><BR/>My assvice, get an additional specialist- maybe a rheumotolgist or a GI (to test for other malabsorption issues that could be leading ot the anemia)<BR/><BR/>Plus, is the test still saying MTHFR - cause if not, they mixed up your samples! How are they treating you for that? As I know for homo MTHFR, you have to be on high folic acid your whole Ya Chunhttps://www.blogger.com/profile/08816837461370619194noreply@blogger.comtag:blogger.com,1999:blog-8890141383477975932.post-26924266801566772762009-02-12T13:01:00.000-06:002009-02-12T13:01:00.000-06:00I have to admit I don't know a lot about it, but I...I have to admit I don't know a lot about it, but I do have MTHFR and my understanding of clotting disorders is that many of them don't affect you until you are pregnant. I don't know how it works with others like lupus anticoagulant as far as testing, because MTHFR is a genetic thing so it should show up regardless of whether you are pregnant or not but even so for some women it doesn't seem to Anniehttps://www.blogger.com/profile/08589450319640171616noreply@blogger.comtag:blogger.com,1999:blog-8890141383477975932.post-55322457952829074922009-02-12T08:42:00.000-06:002009-02-12T08:42:00.000-06:00I just wanted to tell you how sorry I am. I wish t...I just wanted to tell you how sorry I am. I wish that no one ever had to go through this heartache. <BR/><BR/>I'm thinking of you and keeping you close to my heart.We have Angel Wingshttps://www.blogger.com/profile/14492464889416475299noreply@blogger.comtag:blogger.com,1999:blog-8890141383477975932.post-61123962321424191172009-02-12T07:59:00.000-06:002009-02-12T07:59:00.000-06:00Whoa - that is one wild ride. I know how you feel ...Whoa - that is one wild ride. I know how you feel hoping for a postivie, because ANY explantion will pacify us for a minute.<BR/><BR/>Sorry - feel better.Carahttps://www.blogger.com/profile/08878937591945134056noreply@blogger.comtag:blogger.com,1999:blog-8890141383477975932.post-64155448485657265472009-02-11T23:31:00.000-06:002009-02-11T23:31:00.000-06:00Sorry to hear that you didn't find something that ...Sorry to hear that you didn't find something that you could fix. HugsSoralishttps://www.blogger.com/profile/10134991337688208295noreply@blogger.comtag:blogger.com,1999:blog-8890141383477975932.post-1450554688916597822009-02-11T23:01:00.000-06:002009-02-11T23:01:00.000-06:00Bluebird,First, THANK YOU for being such a great s...Bluebird,<BR/>First, THANK YOU for being such a great support to me. I love reading your comments.<BR/>Second, Mayo is my next door neighbor. Literally. Come for a visit.<BR/>Third, I can't offer any medical advice (I believe we share another club membership, the Bar). But, OMG. How frustrating for you. I actually hear you on wanting a diagnosis. I halfway (OK, probably not even halfway) wished Mommy (You can call me OM)https://www.blogger.com/profile/07330090628350118582noreply@blogger.comtag:blogger.com,1999:blog-8890141383477975932.post-66310351322038851282009-02-11T19:47:00.000-06:002009-02-11T19:47:00.000-06:00Wait..wait...are they still saying that you are ho...Wait..wait...are they still saying that you are homo MTHFR? That's what I am (C677T), which has me on Lovenox from ovulation and beyond. I can see how you are confused from the latest tests - and I completely understand the idea of wanting the results to just be conclusive. We're still in that "maybe it's this, or maybe it's not" limbo.<BR/><BR/>Hugs..BOIhttps://www.blogger.com/profile/17699707282547527409noreply@blogger.comtag:blogger.com,1999:blog-8890141383477975932.post-4895044133889894082009-02-11T17:41:00.000-06:002009-02-11T17:41:00.000-06:00gosh, i wrote that same post last summer. after ta...gosh, i wrote that same post last summer. after talking with some other women, doing my own research, i found its COMPLETELY normal. case in point: a friend. she had an actual blood clot 2 weeks after delivery.she came hours away from dying. first test = positive for LA. second = negative. and she had a FREAKING blood clot!<BR/><BR/>so i think, especially when pregnancy is involved, that it can Devonhttps://www.blogger.com/profile/08741058376833464074noreply@blogger.comtag:blogger.com,1999:blog-8890141383477975932.post-89200673054715980522009-02-11T17:04:00.000-06:002009-02-11T17:04:00.000-06:00It's awful not knowing the hows and whys and what ...It's awful not knowing the hows and whys and what nexts. Terrifying too, oh yes.<BR/><BR/>Hang on.<BR/><BR/>xxxBarbarahttps://www.blogger.com/profile/01484695553612265127noreply@blogger.comtag:blogger.com,1999:blog-8890141383477975932.post-16320545014827503132009-02-11T16:29:00.000-06:002009-02-11T16:29:00.000-06:00Shit, hun...I have no assvice/input. I know the f...Shit, hun...I have no assvice/input. I know the frustration of not knowing what the heck is going on with your own body/why this all happenedd...just wanting some ANSWERS! I am hoping that you find them at your appointment Friday. It won't bring your babies back, but it will take a big weight off your chest.<BR/>((HUGS))Anonymousnoreply@blogger.com